Help! White Matter Lesions

The Mrs and I have been in similar situations. It’s hard to keep your mind from wandering the what if’s, it’s scary, it’s frustrating. It’s cliche but “emotional roller coaster” is a very apt description. Both of you need to stay positive as much as possible. It helps tremendously. It’s not always easy.

Get her into the best hospital and in front of their best docs.

Mojo to you and her and the rest of the family.
 
That's really scary. I hope that whatever it turns out to be isn't progressive and that given time, heals.
 
BlockInlay said:
Both of you need to stay positive as much as possible. It helps tremendously. It’s not always easy.

Get her into the best hospital and in front of their best docs.
Click to expand...

This.

Stay positive and listen to the best docs.

Write down all questions for your next consultation. Otherwise, you think of something you wanted to ask two hours after the visit.

You're the caregiver now. Be as helpful, patient and positive as you can be, because that's what you wife needs right now.

I couldn't have gone through my medical crisis without the support of my wife. She was my rock.
 
Hi all. Thanks for the mojo and well wishes. We got the neurological report back and went over some info. She just went through a spinal MRI about 30 minutes ago. 50 minutes long. What you need to know is she is VERY claustrophobic. She doesn't ride elevators. She has now made it through 2 MRI's successfully. So proud of her.
We (doctors) are pretty sure it is MS. They are doing more tests (the spinal MRI and a spinal tap, please make the jokes, to rule out NMO) NMO isn't pretty but gets misdiagnosed as MS and the treatment is slightly different. She is in good spirits.
Interesting aside, she has uncovered that there were 2 instances in the past that were probably misdiagnosed. One 10 years ago when she had dizziness and the MS test came back negative and then 5 years ago when they just said she needed glasses.
So it's entirely possible she has had this for 10 years and not known which, actually, might be a good thing in that this is a flare up of MS or NMO that we can control and being that she has had it for so long it is not showing progression into debilitating levels such as loss of vision or losing the ability to walk.
I'm spitballing to keep my hopes up but whatever. Just want her home. Night 4 in the hospital tonight.
Been going 2 and 3 times a day while juggling 3 kids. Kids have gone several times and are also in good spirits although they don't know the extent of things since they wouldn't understand it all.
Thanks again for the support. Hanging in there.
 
Knowing what's going on has to be way better than the unknowing. Even when the knowing isn't the best of news, at least you can form a plan and hopefully the doctors can treat whatever it turns out to be

Continued Mojo
 
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