Chihli's Wings

[Phil513]

I'll be making them tomorrow, im picking up the stuff to make it today.

Im so happy! Pics will come.

I can't believe the cost of cooking oil right now. UGH. Its almost as expensive as the chicken.

[Prages]

I thought this was a thread about Chili's wings, as in the restaurant Chili's.

I actually like their boneless buffalo wings. :o

[Phil513]

Hooters makes a wonderful Buffalo Chicken Breast sandwich. Yum

[JModius1972]

Hooters makes a wonderful Buffalo Chicken Breast sandwich. Yum


There's a joke in there somewhere.... ;D

[Phil513]

Hooters makes a wonderful Buffalo Chicken Breast sandwich. Yum


There's a joke in there somewhere.... ;D


Another job for thredlok . . . .

[Prages]

Hooters and breast jokes don't really do much for me, since that's pretty much their shtick anyway.

[telecaster911]

Is there a recipe for chihli's wings somewhere?

[Phil513]

Yeah, in the food thread i posted a variation on his recipe, the ingredients are the same.

Instead of marinading and baking though, just deep fry the wings til they are golden brown, then roll them around in the sauce.

Dip in bleu cheese dressing of course.

I did get the stuff, although i forgot the dressing, i gotta get that on the way home.

[Phil513]

BTW, i dont have a deep fryer, i find a wok works just fine.

[thredlok]

The last few times I made them I used my gas grill til they were nice and crispy then tossed them in franks hot sauce.

[JModius1972]

Well folks we're T minus 30 minutes to wing time. I even picked up a shiny new deep fryer for the occasion. And yes, there will be pics on Monday. Many pics, I promise you. I've got a few sauce concoctions in the mix, so I'll let you know how they turn out.

8)

[Chihlidog]

Well folks we're T minus 30 minutes to wing time. I even picked up a shiny new deep fryer for the occasion. And yes, there will be pics on Monday. Many pics, I promise you. I've got a few sauce concoctions in the mix, so I'll let you know how they turn out.

8)


:o Habanero wings????? I am gonna do my wings tonight I think, but I am out of red hot so I gotta go get some. After the game.

[JModius1972]

Well folks we're T minus 30 minutes to wing time. I even picked up a shiny new deep fryer for the occasion. And yes, there will be pics on Monday. Many pics, I promise you. I've got a few sauce concoctions in the mix, so I'll let you know how they turn out.

8)


:o Habanero wings????? I am gonna do my wings tonight I think, but I am out of red hot so I gotta go get some. After the game.


Actually, I decided against using the fresh habs, but I have something else in store to torture myself. My lips are :-X right now...

[Chihlidog]

Well folks we're T minus 30 minutes to wing time. I even picked up a shiny new deep fryer for the occasion. And yes, there will be pics on Monday. Many pics, I promise you. I've got a few sauce concoctions in the mix, so I'll let you know how they turn out.

8)


:o Habanero wings????? I am gonna do my wings tonight I think, but I am out of red hot so I gotta go get some. After the game.


Actually, I decided against using the fresh habs, but I have something else in store to torture myself. My lips are :-X right now...


I expect a full report later ;D

[FenderPusher]

Habanero wings or bant. :D

[Phil513]

Im frying wings as i type. YAY!!!!!

[Mark Wein]

Is it a 3 way "Wing off"?

[Phil513]

I guess so. hahaha. Im taking pics too. I'll see if i can put up some later.

I got a family pak of wings, so im making a bunch of 'em.

[Mark Wein]

I'm jealous...we are going to Wiener chnitzel for chili dogs right now, though ;D

[Phil513]

I havent been there in years, i just remember getting piles of chili dogs when i was younger. hahaha.

I still havent found a place that sells dave's insanity sauce, so i pour a whole bottle of tabasco in my sauce, just to get the heat up.

[thredlok]

I havent been there in years, i just remember getting piles of chili dogs when i was younger. hahaha.

I still havent found a place that sells dave's insanity sauce, so i pour a whole bottle of tabasco in my sauce, just to get the heat up.


I think my local supermarket carries it, you want some?

[Phil513]

Dave's Insanity? Sure, we can work something out, thank you!

PM me with a way to send some $$. Funny i havent found it here anywhere.

[thredlok]

I picked up some chicken wings at the store today you guys are a bad influence!

I'm thinking of making two batches on traditional, and one with a General Tso's style sauce ;D

[Phil513]

Mines done, pics on the way! ;D ;D ;D ;D ;D

[FenderPusher]

The gf just made some outstanding bourbon chicken from an online recipe. It was the queen's tits. :D

[Phil513]

Any chance you can post the recipe for us FenderPusher?

Here are my wing pics.

First, the pile of cut wings, they gave their lives for a good cause . . .
http://i125.photobucket.com/albums/p80/noelpointer/HPIM0620.jpg

And the frying . . . .

http://i125.photobucket.com/albums/p80/noelpointer/HPIM0622.jpg

And the finished plate . . .

http://i125.photobucket.com/albums/p80/noelpointer/HPIM0623.jpg

I put both Tabasco and Sriracha (Rooster) in it to get it good and hot. Im sweating profusely, my nose is runny, and im way happy. ;D

Munching on 'em now . . .

[Mark Wein]

Looks awesome!

We were discussing getting a wok at dinner tonight...my wife agrees that if we get a fryer we'll just fry everything ;D

My chilidogs are barking :-[

[Phil513]

Yeah, a wok works great for anything i want to do, plus it can do lots of other stuff.

Good enough for me anyway. ;D

[thredlok]

damn those look good :o

[Phil513]

They are great. hahaha. But seriously dude, im on fire. hahaha.

[FenderPusher]

Those wings look amazing, and I'm still full from dinner. Here's the recipe for bourbon chicken:

SERVES 4 (change servings and units)

Ingredients

* 2 lbs boneless chicken breasts, cut into bite-size pieces
* 1-2 tablespoon olive oil
* 1 garlic clove, crushed
* 1/4 teaspoon ginger
* 3/4 teaspoon crushed red pepper flakes
* 1/4 cup apple juice
* 1/3 cup light brown sugar
* 2 tablespoons ketchup
* 1 tablespoon cider vinegar
* 1/2 cup water
* 1/3 cup soy sauce

Directions

1. Heat oil in a large skillet.
2. Add chicken pieces and cook until lightly browned.
3. Remove chicken.
4. Add remaining ingredients, heating over medium Heat until well mixed and dissolved.
5. Add chicken and bring to a hard boil.
6. Reduce heat and simmer for 20 minutes.
7. Serve over hot rice and ENJOY.










































:D :D :D

[Phil513]

Thanks dude! Its now on my list of stuff to try!

And yes, they are very good, and way hot. hahaha.

Im not looking forward to my morning constitutional. hahahaha

[Mark Wein]

Those wings look amazing, and I'm still full from dinner. Here's the recipe for bourbon chicken:

SERVES 4 (change servings and units)

Ingredients

* 2 lbs boneless chicken breasts, cut into bite-size pieces
* 1-2 tablespoon olive oil
* 1 garlic clove, crushed
* 1/4 teaspoon ginger
* 3/4 teaspoon crushed red pepper flakes
* 1/4 cup apple juice
* 1/3 cup light brown sugar
* 2 tablespoons ketchup
* 1 tablespoon cider vinegar
* 1/2 cup water
* 1/3 cup soy sauce

Directions

1. Heat oil in a large skillet.
2. Add chicken pieces and cook until lightly browned.
3. Remove chicken.
4. Add remaining ingredients, heating over medium Heat until well mixed and dissolved.
5. Add chicken and bring to a hard boil.
6. Reduce heat and simmer for 20 minutes.
7. Serve over hot rice and ENJOY.







That looks great!

Wheres the Bourbon, though?

[FenderPusher]

Dunno, recipe said it's bourbon-less but it doesn't matter, it's damn tasty. Try it. :D

[Mark Wein]

Dunno, recipe said it's bourbon-less but it doesn't matter, it's damn tasty. Try it. :D


Looks like it....possibly dinner for tomorrow night!

[Chihlidog]

Dude, you HAVE to try them with Dave's. Seriously. Just a teaspoon will make the sauce hot enough for most people. I mean HOT, and it doesnt change the flavor much at all if any. Dave's is a low and slow burn, kinda like a hab. One wing and you're going "oooohhhhh yeah" and after 6 you're going "ahhhhhhhhhhhhhhhhhhhhhh crap!".

I remember one night watching Raiders of the Lost Ark, my eyes were watering so bad I had to keep rewinding after I wiped my eyes.

But they do look perfect, Phil.....that color is exactly how my sauce looks. Man. I really HAVE to make some tonight now, even though I am still a little full from the wife's stuffed peppers. I'll give it another hour or 2 at least. Gotta wait till the woman goes to bed anyway.

[Phil513]

Thanks dude! They were very good.

I hope your wife is feeling better, my GF is having some pretty big troubles right now herself, i feel for her.

Anyway, yes i have a hookup for Dave's, Thredlok is going to send a bottle my way. They just dont seem to have it out here.

And yes, i wear contacts, many is the time i have messed with my eyes and regretted it, in fact even washing my hands well doesnt seem to fix it right away. hahaha.

These were the hottest batch i made so far, i was in a fair amount of pain, and for me that no small feat. hahahah. But i'll do the dave's, i'll let you know when i do.

[Mark Wein]

I've gotta find me some Daves around here...maybe I can order it online...

Chili - have you ever tried Tapatio? Its my current addiction... ;D

[FenderPusher]

I've gotta find me some Daves around here...maybe I can order it online...

Chili - have you ever tried Tapatio? Its my current addiction... ;D


www.sweatnspice.com

[Aahzz]

Source for Dave's online

http://www.hotsauce.com/

[Mark Wein]

Source for Dave's online

http://www.hotsauce.com/


http://www.hotsauce.com/Sarah-Palin-Hot-for-V-P-Hot-Sauce-p/1463.htm ;D

[Chihlidog]

Both websites are good. Seriously, EVERY "chilehead" needs to have a bottle of Dave's around. Not much for flavor, but it has a unique burn and is fantastic for adding to other pepper-based sauces (cayenne, Tabasco, serrano at least) without messing with their flavor.

I'm lucky, my local supermarket sells Dave's for like 4 bucks a bottle. Of course, one bottle will last me a few months so it isnt like my other favorite sauces I need to buy once a week. I buy Frank's red hot by the gallon. :-\

[Mark Wein]

Is there a specific Daves sauce? There seems to be several of them on the site....

[Chihlidog]

Source for Dave's online

http://www.hotsauce.com/


http://www.hotsauce.com/Sarah-Palin-Hot-for-V-P-Hot-Sauce-p/1463.htm ;D


HAHAHAHAHAHAHAHA I might have to order that.


I got some new sauces from some good friends in Texas I havent tried yet, gotta get a pic of those uploaded. I'm such a goof with this stuff, I think I have a bigger hot sauce collection than I do anything else.

[Phil513]

I'll definately try it. I love things hot.

I know there are shops around that have tons of hot sauce, but the only ones i know of for sure are a long ways from me.

I know there is one not too far from Mark, (at the outlet center up the 5 fwy, has egyptian stuff on the building, i think it was an old firestone buidling, i'll find the name of it) They have a store with aisles of hot sauce.

[Phil513]

Citadel Outlet Center. They have tons Mark. I dont know about Dave's for sure, but im willing to be they do.

[Chihlidog]

I'll definately try it. I love things hot.

I know there are shops around that have tons of hot sauce, but the only ones i know of for sure are a long ways from me.

I know there is one not too far from Mark, (at the outlet center up the 5 fwy, has egyptian stuff on the building, i think it was an old firestone buidling, i'll find the name of it) They have a store with aisles of hot sauce.


Prolly easier just to order it online. What is it, 5 or 6 bucks from those websites? Judging from what you have posted, a bottle will last you for a good few years.

I can drink tabasco or Frank's or any "normal" sauce like water. I actually did once cause my wife kinda egged me on. Not a brag, just how it is. I cant detect ANY heat in either anymore.

Point being, Daves is super hot for me. If you can get heat still from Tabasco, I would guess you still have some normal pain receptors in your mouth and would only need a few drops of Dave's like I used to. ;D

I still find it unpleasant to taste it un-diluted. Not killer, over the top kinda thing, but too hot to be pleasant for sure. The stuff is no joke.

[Phil513]

Sounds perfect. hahaha.

I shall do exactly that. ;D

[Mark Wein]

Oh..I didn't know there was one in there...I remember when it was the old derelict building along the 5...I've never been there since the put the stores in there...

[Mark Wein]

I'll definately try it. I love things hot.

I know there are shops around that have tons of hot sauce, but the only ones i know of for sure are a long ways from me.

I know there is one not too far from Mark, (at the outlet center up the 5 fwy, has egyptian stuff on the building, i think it was an old firestone buidling, i'll find the name of it) They have a store with aisles of hot sauce.


Prolly easier just to order it online. What is it, 5 or 6 bucks from those websites? Judging from what you have posted, a bottle will last you for a good few years.

I can drink tabasco or Frank's or any "normal" sauce like water. I actually did once cause my wife kinda egged me on. Not a brag, just how it is. I cant detect ANY heat in either anymore.

Point being, Daves is super hot for me. If you can get heat still from Tabasco, I would guess you still have some normal pain receptors in your mouth and would only need a few drops of Dave's like I used to. ;D

I still find it unpleasant to taste it un-diluted. Not killer, over the top kinda thing, but too hot to be pleasant for sure. The stuff is no joke.


:o

[Phil513]

OH yeah, its a thriving outlet center now. There is a specialty shop there with lots of hot sauces. Even one you have to sign a waiver to buy. hahaha.

So, in all your spare time . . . .

hahahahaha

[Mark Wein]

OH yeah, its a thriving outlet center now. There is a specialty shop there with lots of hot sauces. Even one you have to sign a waiver to buy. hahaha.

Sound like something that would pass through my digestive system like lightning :o



So, in all your spare time . . . .

hahahahaha


Haha. You're funny. ::)




:P

[Phil513]

Hahaha. It was an extract of some kind, with a skull on it. Im sure the waiver was a marketing thing, i seriously doubt if they get sent into some building and added to a database. hahaha. But its fun.

And as far as free time, well,




maybe online is better. hahahahaha. I have a lot of free time these days, sadly cause my GF is doing quite poorly. Not good. Id rather it be hectic again.

[Mark Wein]

Whats up with your girlfriend if you don't mind me asking in a public forum?

And how is Mrs Chihili doing at the moment as well?

[Phil513]

Her BP is through the roof, and some disturbing things that prob require a removal of plumbing, if you get my drift.

Im worried.

[Mark Wein]

Her BP is through the roof, and some disturbing things that prob require a removal of plumbing, if you get my drift.

Im worried.



Thats a drag...send her our best wishes... :(

[Phil513]

Thanks Mark, i'll do so.

[Chihlidog]

Hahaha. It was an extract of some kind, with a skull on it. Im sure the waiver was a marketing thing, i seriously doubt if they get sent into some building and added to a database. hahaha. But its fun.

And as far as free time, well,




maybe online is better. hahahahaha. I have a lot of free time these days, sadly cause my GF is doing quite poorly. Not good. Id rather it be hectic again.


Um, if it's a Blair's sauce with a skull on it, I assure you it is no marketing ploy. I wouldnt touch Blair's stuff. Seriously. I am not into pain. Well, a LITTLE pain.

You know what scoville units are? If not just google them. Let's put things into perspective here.

A jalapeno rates at 2500-5000.

A cayenne rates at 30,000 - 50,000

A hab at about 350,000 on the high end.

The best estimates for Dave's insanity hover around 200,000

I can tell you from personal tasting, these ratings seem pretty much correct to me. Dave's is on the very high end of what I can "handle". A cayenne has a nice burn. A jalapeno is a little tingly. A hab makes me want to die. Dave's is, as I said, over the line of a "good" burn but not a "I want to DIE" like a hab. So they all seem pretty accurate based on my subjective rating based on tasting all of them.

Blair's hottest sauce is SIXTEEN MILLION. Dude, you couldnt PAY me to try it. And I LOVE heat. Aaaaahhhhhzzzz might be able to handle it, because based on his posts he is just plain crazy. That man has balls the size of Russia.

So, point being, if the sauce that had a skull on it was a Blair's sauce, I assure you the waiver is no marketing ploy. I wanted to sue MYSELF after I ate one of my fresh habs, and his sauces generally START at that much heat and go up from there. :o


So whats up with your better half man?

EDIT: Nevermind, I saw your answer to Mark asking that. Man, I dont know EXACTLY what's up, but I do know what it's like to have something wrong with your loved one. Only thing in the world worse is if its your kids, an I wouldnt want to have to make the choice, neither are easy.

Best wishes to her, and in keeping with my own personal beliefs, I will definitely be praying for her and for both of you.

[Phil513]

Good lord.

You'd need to use and eyedropper for big pots of stew with that.

I wouldnt have a use for it really. hahaha

[Mark Wein]

Well, I hope everyone's loved ones get healthier soon... :)

[Phil513]

Thank you both. Yeah its disturbing, it has me pretty worried.

And yes Chihli, your prayers are appreciated. There will be some tough days ahead methinks.

[Chihlidog]

Whats up with your girlfriend if you don't mind me asking in a public forum?

And how is Mrs Chihili doing at the moment as well?


BJ (my wife, her name is Bobbie Jo) is cool. She is sick, and miserable, but just a normal sick and miserable. Her Sjogren's seems to be under control at the moment. She is on herbs and vitamins and supplements, etc. I told her I wanted her to start taking Chondroitin and Glucosamene (sp?) and she has, along with other stuff, and it seems to be working very, very well.

She has done a lot more physical activity than normal this summer with seemingly no ill effects whatsoever, and stopped taking her meds because they were having odd and bothersome side effects. Her rheumatologist basically told her that it was fine to stop taking the plaqinell (sp?) if she actually felt better.

Her joints and bones are in bad shape for her age, and will continue to be. Unfortunately there is nothing we can do about it. She needs a crap-ton of dental work because this disease is attacking her teeth, just like every other bone in her body.

HOWEVER, she can basically do whatever she wants to without pain and swelling for now, she feels good, has normal amounts of energy, and can live completely normally with this disease, at least for now.

So, needless to say, we are glad that she feels good, and taking full advantage of it while she does.

[Chihlidog]

Thank you both. Yeah its disturbing, it has me pretty worried.

And yes Chihli, your prayers are appreciated. There will be some tough days ahead methinks.


Have they diagnosed her with anything specific? If you dont want to answer, it's totally cool but I can relate. I know that doctors are really great at what they do, but I really have to say that sometimes herbs and homeopathic methods can do pretty amazing things.


Of course, I also believe that prayer can too but I wont beat anyone over the head with either. :)

[Mark Wein]

Whats up with your girlfriend if you don't mind me asking in a public forum?

And how is Mrs Chihili doing at the moment as well?


BJ (my wife, her name is Bobbie Jo) is cool. She is sick, and miserable, but just a normal sick and miserable. Her Sjogren's seems to be under control at the moment. She is on herbs and vitamins and supplements, etc. I told her I wanted her to start taking Chondroitin and Glucosamene (sp?) and she has, along with other stuff, and it seems to be working very, very well.

She has done a lot more physical activity than normal this summer with seemingly no ill effects whatsoever, and stopped taking her meds because they were having odd and bothersome side effects. Her rheumatologist basically told her that it was fine to stop taking the plaqinell (sp?) if she actually felt better.

Her joints and bones are in bad shape for her age, and will continue to be. Unfortunately there is nothing we can do about it. She needs a crap-ton of dental work because this disease is attacking her teeth, just like every other bone in her body.

HOWEVER, she can basically do whatever she wants to without pain and swelling for now, she feels good, has normal amounts of energy, and can live completely normally with this disease, at least for now.

So, needless to say, we are glad that she feels good, and taking full advantage of it while she does.




I guess you do what you can and enjoy life to the fullest while you can...is this something that she can maintain for a long time?

[Phil513]

Oh wow, im very sorry.

Prayers back at you then. Im glad she is in a good place for now though.

Well, apparently its fibroid tumors, lots and big. Not malignant, but large, like grapefruit size i guess.

I dunno. They have been shrunk before, but i guess this time its beyond that.

[Mark Wein]

I know that doctors are really great at what they do, but I really have to say that sometimes herbs and homeopathic methods can do pretty amazing things.



I don't trust most doctors anymore...since my Dads illness, some stuff both my wife and inlaws went through and a mistake they just made at the hospital with my Daughter this week that scared us to death over nothing I am turning into a Cynic. Our family Doctor is really good, though and I have a student who is one of the best surgeons in SoCal so I do have a few I can trust.

[Mark Wein]

Oh wow, im very sorry.

Prayers back at you then. Im glad she is in a good place for now though.

Well, apparently its fibroid tumors, lots and big. Not malignant, but large, like grapefruit size i guess.

I dunno. They have been shrunk before, but i guess this time its beyond that.


I know someone who has a large one that just had a baby this year and is doing quite well...I guess it depends on the individual situation but I do know someone who is living quite well with the condition...

[Phil513]

She has fought them off for years, they come and go. i guess now though its gone into other parts too, without getting too graphic.

She was doubled over in pain, they gave her vicodin, and that messed her up horribly. So now they gave her tamodol hydrochloride, or something like that, its helping with pain but makes her really dizzy.

Its just kinda messy right now. They recommend its time for it all to go.

[Mark Wein]

That's a shame... :(

I'm not big on prayer myself but I've got good thoughts to put out there for you guys and you families....

[Phil513]

Thanks Mark. Im glad this is a friendly place to hang out.


How did we get from wings to this? hahaha.

[Chihlidog]

Whats up with your girlfriend if you don't mind me asking in a public forum?

And how is Mrs Chihili doing at the moment as well?


BJ (my wife, her name is Bobbie Jo) is cool. She is sick, and miserable, but just a normal sick and miserable. Her Sjogren's seems to be under control at the moment. She is on herbs and vitamins and supplements, etc. I told her I wanted her to start taking Chondroitin and Glucosamene (sp?) and she has, along with other stuff, and it seems to be working very, very well.

She has done a lot more physical activity than normal this summer with seemingly no ill effects whatsoever, and stopped taking her meds because they were having odd and bothersome side effects. Her rheumatologist basically told her that it was fine to stop taking the plaqinell (sp?) if she actually felt better.

Her joints and bones are in bad shape for her age, and will continue to be. Unfortunately there is nothing we can do about it. She needs a crap-ton of dental work because this disease is attacking her teeth, just like every other bone in her body.

HOWEVER, she can basically do whatever she wants to without pain and swelling for now, she feels good, has normal amounts of energy, and can live completely normally with this disease, at least for now.

So, needless to say, we are glad that she feels good, and taking full advantage of it while she does.




I guess you do what you can and enjoy life to the fullest while you can...is this something that she can maintain for a long time?


Who knows? I posted about this quite a few times on HC, but assuming you know nothing about what is happening with her, here is the basic rundown.

Initially, she was diagnosed with Lupus, which is an auto-immune disease which can attack any part or any system of the body at any time. Lupus can (it isnt usually, but CAN be) be a death sentence.

She had a friend growing up who died in her mid-30s due to Lupus.

We were horrified at first, and I took it way worse than she did. I tried to be cool about it, but never really got to that point.

Long story short, turns out that she does not in fact have Lupus, but rather Sjogren's syndrome. Sjogren's is an auto-immune disorder in the same vein as Lupus and Rehumatoid arthritis, but Sjogren's attacks the moisture-producing glands in the body primarily, but can attack bones and joints or whatever else it feels like.

Well, hers attacks bones and joints, along with moisture glands. So, basically, her joints are all jacked up, she has arthritis, she can get swollen from doing normal things such as walking or typing, etc, and she has dry eyes and dry-mouth and things like that. In her case, it seems to attack her bones and moisture glads equally.

All that being said, she doesnt really have to worry about her major organs or anything like that. We are grateful for that. It is possible, if not probable, that in a few years she will have major problems doing normal things that require normal movement. Her specialist has already told her that she has the joints of a 70 year old woman. She is 30.

If we can slow that, hopefully she can maintain her current level of mobility, and hopefully even improve it. But the fact is, we just dont know. So we take each day as it comes.

Which is why we decided to foolishly "blow our wad" so to speak on a trip to NYC, so she could see it while she s still able to walk normally and feel decent doing it.

We dont know how she will fel next week or next year. Nobody can predict it.

So, anyway, that was a huge post but that is the simplest I can explain it.

[Mark Wein]

Yeah! What happened to our mindless distraction! ;D

[Phil513]

Wow, Chihli, i guess i missed all that back on HC. That must be such a struggle.

I'll be lifting the both of you up.

[Mark Wein]

Whats up with your girlfriend if you don't mind me asking in a public forum?

And how is Mrs Chihili doing at the moment as well?


BJ (my wife, her name is Bobbie Jo) is cool. She is sick, and miserable, but just a normal sick and miserable. Her Sjogren's seems to be under control at the moment. She is on herbs and vitamins and supplements, etc. I told her I wanted her to start taking Chondroitin and Glucosamene (sp?) and she has, along with other stuff, and it seems to be working very, very well.

She has done a lot more physical activity than normal this summer with seemingly no ill effects whatsoever, and stopped taking her meds because they were having odd and bothersome side effects. Her rheumatologist basically told her that it was fine to stop taking the plaqinell (sp?) if she actually felt better.

Her joints and bones are in bad shape for her age, and will continue to be. Unfortunately there is nothing we can do about it. She needs a crap-ton of dental work because this disease is attacking her teeth, just like every other bone in her body.

HOWEVER, she can basically do whatever she wants to without pain and swelling for now, she feels good, has normal amounts of energy, and can live completely normally with this disease, at least for now.

So, needless to say, we are glad that she feels good, and taking full advantage of it while she does.




I guess you do what you can and enjoy life to the fullest while you can...is this something that she can maintain for a long time?


Who knows? I posted about this quite a few times on HC, but assuming you know nothing about what is happening with her, here is the basic rundown.

Initially, she was diagnosed with Lupus, which is an auto-immune disease which can attack any part or any system of the body at any time. Lupus can (it isnt usually, but CAN be) be a death sentence.

She had a friend growing up who died in her mid-30s due to Lupus.

We were horrified at first, and I took it way worse than she did. I tried to be cool about it, but never really got to that point.

Long story short, turns out that she does not in fact have Lupus, but rather Sjogren's syndrome. Sjogren's is an auto-immune disorder in the same vein as Lupus and Rehumatoid arthritis, but Sjogren's attacks the moisture-producing glands in the body primarily, but can attack bones and joints or whatever else it feels like.

Well, hers attacks bones and joints, along with moisture glands. So, basically, her joints are all jacked up, she has arthritis, she can get swollen from doing normal things such as walking or typing, etc, and she has dry eyes and dry-mouth and things like that. In her case, it seems to attack her bones and moisture glads equally.

All that being said, she doesnt really have to worry about her major organs or anything like that. We are grateful for that. It is possible, if not probable, that in a few years she will have major problems doing normal things that require normal movement. Her specialist has already told her that she has the joints of a 70 year old woman. She is 30.

If we can slow that, hopefully she can maintain her current level of mobility, and hopefully even improve it. But the fact is, we just dont know. So we take each day as it comes.

Which is why we decided to foolishly "blow our wad" so to speak on a trip to NYC, so she could see it while she s still able to walk normally and feel decent doing it.

We dont know how she will fel next week or next year. Nobody can predict it.

So, anyway, that was a huge post but that is the simplest I can explain it.




Thanks for letting me know...I saw some of your earlier posts but I never saw the one with this info on HC.

My sisters sister-in-law has had Lupus for 25 or so years and that has been the major charity that their family has promoted with their kids so I am somewhat familiar with that if not your wife's actual condition.

Your trip to New York wasn't a foolish thing in my estimation...you have to live each day to the fullest and take the opportunities as they come. Situations like this serve to remind us how fortunate we are with each passing day. With luck you can look back on this time for many years to come with good memories but still have your wife in relatively good health.

[Chihlidog]

Yeah! What happened to our mindless distraction! ;D


No worries my friend. Very soon I shall be indulging in a Jack and Coke and a batch of wings! ;D

[Phil513]

Hahahahaha sounds good dude.

Around here, you are the father of all that is wings. You are the one that got me into it. ;D

[Mark Wein]

Yeah! What happened to our mindless distraction! ;D


No worries my friend. Very soon I shall be indulging in a Jack and Coke and a batch of wings! ;D


Excellent!

I have a wife sleeping on the couch, a baby sleeping in a "Papa-San" chair behind me and my son asleep in his room. I can't do anything but surf the internet


oops baby just woke !

[Phil513]

Im stuffed on wings, drinking some Milwaukee's Best. hahaha.

I know its cheapo, but its what i can afford, and honestly i dont have a taste for the heavier stuff.

[Chihlidog]

Whats up with your girlfriend if you don't mind me asking in a public forum?

And how is Mrs Chihili doing at the moment as well?


BJ (my wife, her name is Bobbie Jo) is cool. She is sick, and miserable, but just a normal sick and miserable. Her Sjogren's seems to be under control at the moment. She is on herbs and vitamins and supplements, etc. I told her I wanted her to start taking Chondroitin and Glucosamene (sp?) and she has, along with other stuff, and it seems to be working very, very well.

She has done a lot more physical activity than normal this summer with seemingly no ill effects whatsoever, and stopped taking her meds because they were having odd and bothersome side effects. Her rheumatologist basically told her that it was fine to stop taking the plaqinell (sp?) if she actually felt better.

Her joints and bones are in bad shape for her age, and will continue to be. Unfortunately there is nothing we can do about it. She needs a crap-ton of dental work because this disease is attacking her teeth, just like every other bone in her body.

HOWEVER, she can basically do whatever she wants to without pain and swelling for now, she feels good, has normal amounts of energy, and can live completely normally with this disease, at least for now.

So, needless to say, we are glad that she feels good, and taking full advantage of it while she does.




I guess you do what you can and enjoy life to the fullest while you can...is this something that she can maintain for a long time?


Who knows? I posted about this quite a few times on HC, but assuming you know nothing about what is happening with her, here is the basic rundown.

Initially, she was diagnosed with Lupus, which is an auto-immune disease which can attack any part or any system of the body at any time. Lupus can (it isnt usually, but CAN be) be a death sentence.

She had a friend growing up who died in her mid-30s due to Lupus.

We were horrified at first, and I took it way worse than she did. I tried to be cool about it, but never really got to that point.

Long story short, turns out that she does not in fact have Lupus, but rather Sjogren's syndrome. Sjogren's is an auto-immune disorder in the same vein as Lupus and Rehumatoid arthritis, but Sjogren's attacks the moisture-producing glands in the body primarily, but can attack bones and joints or whatever else it feels like.

Well, hers attacks bones and joints, along with moisture glands. So, basically, her joints are all jacked up, she has arthritis, she can get swollen from doing normal things such as walking or typing, etc, and she has dry eyes and dry-mouth and things like that. In her case, it seems to attack her bones and moisture glads equally.

All that being said, she doesnt really have to worry about her major organs or anything like that. We are grateful for that. It is possible, if not probable, that in a few years she will have major problems doing normal things that require normal movement. Her specialist has already told her that she has the joints of a 70 year old woman. She is 30.

If we can slow that, hopefully she can maintain her current level of mobility, and hopefully even improve it. But the fact is, we just dont know. So we take each day as it comes.

Which is why we decided to foolishly "blow our wad" so to speak on a trip to NYC, so she could see it while she s still able to walk normally and feel decent doing it.

We dont know how she will fel next week or next year. Nobody can predict it.

So, anyway, that was a huge post but that is the simplest I can explain it.




Thanks for letting me know...I saw some of your earlier posts but I never saw the one with this info on HC.

My sisters sister-in-law has had Lupus for 25 or so years and that has been the major charity that their family has promoted with their kids so I am somewhat familiar with that if not your wife's actual condition.

Your trip to New York wasn't a foolish thing in my estimation...you have to live each day to the fullest and take the opportunities as they come. Situations like this serve to remind us how fortunate we are with each passing day. With luck you can look back on this time for many years to come with good memories but still have your wife in relatively good health.


Lots of people on HC posted about knowing people with Lupus when we got the initial diagnosis. It made me feel so much better about it.

I have to admit.........look you guys all know where I stand, which of course is the main reason I got so frustrated and angry on GJ, because I was constantly getting crap for it. But I have to admit, I really, REALLY struggled when we were told that. Not with what I know to be true, but how I felt about God.

We had some pretty big fights. Ones in which I said things I regret to this day. Even now I admit, I am struggling with it at times. Like, how could you bring her back into my life, knowing how I feel about her, and then give us THIS?????

Anyway, that is beside the point. Honestly, we are both glad it isnt Lupus. And We kinda have the attitude of "let's LIVE. Live now, do what we have always wanted to do and take each day as it comes".

Sometimes it isnt the wisest things we do but we feel very blessed to live the life we are right now.

[Chihlidog]

Im stuffed on wings, drinking some Milwaukee's Best. hahaha.

I know its cheapo, but its what i can afford, and honestly i dont have a taste for the heavier stuff.


Hey man, you know what my favorite beers are? Natural Ice, MGD, and Yeungling, in that order. If I am drinking beer, believe me it's the cheap stuff. :D

[Mark Wein]

Lots of people on HC posted about knowing people with Lupus when we got the initial diagnosis. It made me feel so much better about it.

I have to admit.........look you guys all know where I stand, which of course is the main reason I got so frustrated and angry on GJ, because I was constantly getting crap for it. But I have to admit, I really, REALLY struggled when we were told that. Not with what I know to be true, but how I felt about God.

We had some pretty big fights. Ones in which I said things I regret to this day. Even now I admit, I am struggling with it at times. Like, how could you bring her back into my life, knowing how I feel about her, and then give us THIS?????

Anyway, that is beside the point. Honestly, we are both glad it isnt Lupus. And We kinda have the attitude of "let's LIVE. Live now, do what we have always wanted to do and take each day as it comes".

Sometimes it isnt the wisest things we do but we feel very blessed to live the life we are right now.


I think the luckiest thing is that you know how important it is to live life to the fullest now. Many people lose their chance before they figure that out.

I have quite a few regrets about how I lived my life in my 20's. I wasn't a nice person. The things that cause me the most regret are the things that make me try harder now in this life, with all of my blessings as modest as they might seem to some people. I now know to appreciate what I do have...something I missed for many years and might have never figured out had it not been for my wife....

[Mark Wein]

Im stuffed on wings, drinking some Milwaukee's Best. hahaha.

I know its cheapo, but its what i can afford, and honestly i dont have a taste for the heavier stuff.


Hey man, you know what my favorite beers are? Natural Ice, MGD, and Yeungling, in that order. If I am drinking beer, believe me it's the cheap stuff. :D


I like MGD..I've heard that Yeungling is quite good, though...

[Phil513]

Im stuffed on wings, drinking some Milwaukee's Best. hahaha.

I know its cheapo, but its what i can afford, and honestly i dont have a taste for the heavier stuff.


Hey man, you know what my favorite beers are? Natural Ice, MGD, and Yeungling, in that order. If I am drinking beer, believe me it's the cheap stuff. :D


Oh good, hahahaha

*takes off flame suit*

[Phil513]

Sometime if im up to it i'll share about all my divorce and all the crap that i went through, it wasnt fun.

But my GF now literally saved my life. She's a handful, but means the world to me.

And thats why, Chihli, i eat rice all the time. hahahahahaha.

[Chihlidog]

Im stuffed on wings, drinking some Milwaukee's Best. hahaha.

I know its cheapo, but its what i can afford, and honestly i dont have a taste for the heavier stuff.


Hey man, you know what my favorite beers are? Natural Ice, MGD, and Yeungling, in that order. If I am drinking beer, believe me it's the cheap stuff. :D


I like MGD..I've heard that Yeungling is quite good, though...


You have no idea. Trick is to get is as cold as possible without freezing. I would take an ice cold Yeungling over any other beer n the world.

[Mark Wein]

In good time...I guess we're all friends here at this point :)

[Mark Wein]

Im stuffed on wings, drinking some Milwaukee's Best. hahaha.

I know its cheapo, but its what i can afford, and honestly i dont have a taste for the heavier stuff.


Hey man, you know what my favorite beers are? Natural Ice, MGD, and Yeungling, in that order. If I am drinking beer, believe me it's the cheap stuff. :D


I like MGD..I've heard that Yeungling is quite good, though...


You have no idea. Trick is to get is as cold as possible without freezing. I would take an ice cold Yeungling over any other beer n the world.


Is it only available in Pennsylvania?

[Chihlidog]

Sometime if im up to it i'll share about all my divorce and all the crap that i went through, it wasnt fun.

But my GF now literally saved my life. She's a handful, but means the world to me.

And thats why, Chihli, i eat rice all the time. hahahahahaha.


I am glad you found somebody to bring out the best in you, man. I mean that. And you dont need to share your story of your divorce unless you want to. Look, you're cool in my book regardless. You wanna get it off your chest sometime? Cool. You dont? Cool too. It does sound like your GF is a really cool chick.


HOWEVER, having said all that, rice with MY wings is still utter failure :P ;D

[Phil513]

lolz

You have to understand, Filipinos wont eat a dang popsicle unless rice is served. hahahaha.

But yeah someday i'll get into it. It was a wild ride, and took me to some pretty dark places. But im cool now. Right now though, i'll just sip my beer and chill. hahaha.

[Chihlidog]

lolz

You have to understand, Filipinos wont eat a dang popsicle unless rice is served. hahahaha.

But yeah someday i'll get into it. It was a wild ride, and took me to some pretty dark places. But im cool now. Right now though, i'll just sip my beer and chill. hahaha.


Hey man, I was joking with ya. After some wings, I know that beer tastes AWESOME. Enjoy it. I am glad you're level now, cause I really enjoy hanging with you.

Give my best you your girl. Believe me, I know how badly it sucks for something to be wrong with a wife/gf.

[Phil513]

Yeah, they are funny about rice. The rice cooker goes pretty much nonstop, no exaggeration. hahaha.

Yeah, i'll be happy when she is her old self again. She really showed me the difference between living and just existing.

And yes, beer with wings is a wonderful thing. hahahaha.